please share your data

The Simons Foundation runs a registry for SynGAP patients, we urge every family to participate. It is world-class; well funded and professionally managed.

How can we help you?

SRF is here to raise funds for research and help the patients. But in doing that we are building an ever growing community of incredible parents, siblings and caregivers. If we can help you, let us know. Nobody joins this club on purpose, but once you are in, we take care of each other.

Do you want to help us?

Volunteer: If you would like to lend your time and talent to the efforts of SRF, thank you. We have so much to do. Please contact us and we’ll find good for you.

Join us online: Please follow and like us on all the social media at the bottom of this page. It is incredible what we can achieve together online.

Check out our list of actions with links.