Syngap Global Network is a collaboration between organizations and parents representing the Syngap community in their country. SGN has come together to drive the global unification of Syngap related efforts and initiatives. SRF is proud to be a part of this network.
Overcome Syngap1 (Canada & France)
Overcome works for the SynGAPians and their families in Canada and France. The families in this group are relentless and we are learning from them.
SYNGAP Elternhilfe (Germany)
Verena Schmeder is the driving force behind SYNGAP Elternhilfe, her commitment is undeniable.
Official as of August 1st, 2019, we are thrilled to say that Syngap1.ch is an official Swiss association.
SynGAP Research (Australia)
Same name. We know. What can we say, they have great taste. The family who created this effort and serves the SynGAPian families down under has two affected children. They do remarkable work and seek their wise counsel often.
Leon & Friends (Austria)
L&F was started by the parents of a SynGAPian in Austria. Their resolve and ability to mobilize their community are incredible.
Global Genes’ purpose is to connect, empower, and inspire the rare disease community. SRF is grateful for their leadership.