Lauren Perry - Colorado and Surrounding States

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Lauren Perry’s son was diagnosed with SYNGAP1 in 2016 at the age of 6 after quite a long journey of trying to understand why he was not developing normally and experiencing such an array of symptoms. She spent countless hours at doctor’s appointments, therapy offices and school meetings for him. When he was diagnosed through whole exome sequencing it felt as though she finally had the anchor she was searching for in the Syngap community. Lauren is a Colorado native and loves spending time in the mountains and participating in outdoor activities as much as the Syngap lifestyle allows. She is very interested in supporting other families as they navigate their diagnosis and is here to help in any way she can.