Aaron J Harding, MS is a retired naval officer and clinical laboratory scientist professional with a son diagnosed with SynGAP1 Syndrome in 2013. He and his wife, Monica, additionally have two daughters and reside in San Diego, CA. He received his masters from George Washington University in immunohematology. An active leader within the SynGAP1 community since 2014, he served in several positions within Bridge the Gap - SYNGAP1 ERF, including co-lead of the NORD/FDA SYNGAP1 Data Registry. During his 29 years of naval service which includes deployments in U.S. Central Command, he has been awarded the Joint Defense Meritorious Service Medal (2), Navy Meritorious Service Medal (2), Joint Commendation Medal and Navy Commendation Medal (2). He has several publications in the Clinical Laboratory Sciences and Armed Services Blood Program.
Hans trained in Internal Medicine and Infectious Diseases at Beth Israel Deaconess Medical Center and completed a Clinical Investigator Training Program with a Masters in Medical Sciences from Harvard/MIT Health Sciences and Technology. He is a parent to a son with SYNGAP1 deficiency and since March 2017, an advocate for advancing the care and research for this rare disease.
Laura Ma has a son who was diagnosed with SynGAP1 Syndrome in 2015. Prior to retiring, she was a Director at a management consulting firm. Her areas of specialty while in management consulting included strategy (corporate, marketing, distribution, IT), organizational design/implementation & effectiveness, information technology (strategy, platform/database design and implementation) and regulatory compliance. She received her bachelors from UCLA in Psychology with specializations and concentrations in Business & Administration, Computing, and Developmental Disabilities.
Since her son’s diagnosis, she has immersed herself in understanding his condition and advocates for his well-being, growth, education, and happiness. She credits her son for her tenacity and life perspective.